Getting Harder

30 Oct

Something that I’ve noticed is that it’s getting harder for me to breathe while I lie down. I have to be propped up if I want to breathe well, and it seems like I have to be propped up increasingly more as time has gone on. I don’t know how bad this is going to get, and I haven’t fully addressed it with my doctor yet, because I really just don’t want anything invasive anymore or to be stuck in a hospital again. But I am kind of scared because it’s getting to the point that it’s just harder to breathe in general even with my oxygen, so now I definitely have to fully explain it to my doctor as it’s not only uncomfortable, but it’s frightening. It’s also hard to get decent rest while sitting up, though I have been sleeping pretty much ALL the time.

My pain has been well controlled, and I’m pleased with that. The pain medicines might be causing a bit of my nausea and lightheadedness, but it’s better than the pain. I haven’t really been keeping up like I should with my nutrition and staying hydrated, but I’ll make more of an effort. I’m trying really hard to get used to these Depends, but it’s hard and embarrassing to have to adjust to something like this. I haven’t been making many updates because I haven’t really felt up to it, but I will still try to keep updating.

My mom is going to take some time off of work soon and we’re going to do Christmas a bit early this year. That should be fun. I love Christmas. It’s my favourite.

4 Responses to “Getting Harder”

  1. Knot Telling October 31, 2013 at 6:02 AM #

    I’m really glad your pain us well controlled. That’s so important! As for the rest, well… It’s a good thing our dignity and sense of self-worth are rooted deep within and are not contingent on things like the humiliation of illness.
    I hope your doctor can do something you help you breathe more easily. That will probably help you feel more rested, too.
    Lots of hugs, dear girl.

    • BcomingFree October 31, 2013 at 6:06 AM #

      Yes, I have an implanted pain pump now which is working very well. Yes, I’m trying not to let those things get to me too much, when I’m around just my family it doesn’t bother me. I’m going to talk to my doctor about my breathing. Thank you, hugs!

  2. dglassme October 31, 2013 at 6:49 AM #

    {{{Hugs}}} and Merry early Christmas.

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