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Good Day

17 Nov

She woke up today. She is not in pain today. We spent good time with her. We got to cuddle with her we talked to her and told her all the good things people said to her and about her. We made sure she stayed comfortable all day. Today was a good day.

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My Cousin

14 Nov

I’m writing this for my cousin. She is awake for only short times a day. She needs help doing most things. But her brother got the neighbors to put up their Christmas lights and him and his dad helped them do it. She has trouble breathing and a lot of pain. For Christmas she got a blanket and pajamas and fluffy socks and she really likes them. She likes the Christmas music too. Christmas is her favorite. If you have questions I can answer them and tell her messages for you but she says hi.

Fluid

1 Nov

My dad came and took me straight to the hospital. There was fluid building up in my lungs so I got a chest tube placed to drain it, so now I have that little bubbly thing. There was also fluid building up around my heart, so they did a pericardiocentesis to drain that. Plus to prevent more fluid from building up around my lungs, they’re gonna do a pleurodesis, which I’m pretty sure is gonna hurt. They’re basically going to intentionally scar the lining of my lungs with chemicals. I saw my mom, too. My parents were basically surprised by how bad I looked and got all emotional and stuff and it kinda freaked me out. My brother is coming with his girlfriend later. I missed him. But it’s not as hard to breathe now, I just hate being in the hospital.

Getting Harder

30 Oct

Something that I’ve noticed is that it’s getting harder for me to breathe while I lie down. I have to be propped up if I want to breathe well, and it seems like I have to be propped up increasingly more as time has gone on. I don’t know how bad this is going to get, and I haven’t fully addressed it with my doctor yet, because I really just don’t want anything invasive anymore or to be stuck in a hospital again. But I am kind of scared because it’s getting to the point that it’s just harder to breathe in general even with my oxygen, so now I definitely have to fully explain it to my doctor as it’s not only uncomfortable, but it’s frightening. It’s also hard to get decent rest while sitting up, though I have been sleeping pretty much ALL the time.

My pain has been well controlled, and I’m pleased with that. The pain medicines might be causing a bit of my nausea and lightheadedness, but it’s better than the pain. I haven’t really been keeping up like I should with my nutrition and staying hydrated, but I’ll make more of an effort. I’m trying really hard to get used to these Depends, but it’s hard and embarrassing to have to adjust to something like this. I haven’t been making many updates because I haven’t really felt up to it, but I will still try to keep updating.

My mom is going to take some time off of work soon and we’re going to do Christmas a bit early this year. That should be fun. I love Christmas. It’s my favourite.

Hello

17 Oct

Hi everyone, just wanted to make an update.

So the past couple days have been relatively okay. Just a few complaints. My mouth is so dry. I’ve been using the biotene products, but it’s not helping as much as I want it to. It’s so dry it hurts and I have the most awful taste in my mouth. And the nausea, probably from the pain medicines, and there’s this heartburn that won’t go away. It’s getting more and more intense. It was just an inconvenient gurgle at first, but now it’s like the pits of hell are rumbling up through my insides. I’ve been in my bed for most of the time…probably too many hours out of each day. I need to get up and do stuff, I think. I’m pretty sure it’s the depression. Maybe the fact that I’m always exhausted and always sleeping. But otherwise, not too bad.

On a happier note, my little brother got a new cell phone, and it’s lime green, so now we can text each other pictures and we can just…text more. So that is good. My dad and I had a good talk yesterday. My pain meds are working pretty well. I’ve made a classical music playlist that I like to listen to sometimes, and it’s just kind of relaxing. I also really like that song Royals by Lorde. My dad is doing fantastically well, still having dry mouth. He has to drink water and swish it around in his mouth when he eats food so that he can swallow it. But other than that, he’s doing fantastically. So, yeah, that’s my update.

My Date

3 Sep

My date didn’t go as planned. It was raining, so we couldn’t go to the zoo. I suggested the aquarium, but then he said he couldn’t stay very long. I also was not feeling very well, so we just relaxed and had some tea. I didn’t get to know too much more about him, and it feels like it didn’t last long enough. It may have felt that way regardless of how long it was, though. Overall, I think it was a success, though. I say this because he wants to try for either the zoo or aquarium again next Sunday. So that’s gotta be good news, right? It didn’t come up about the cancer, so I didn’t tell him, but it came up when I saw him at school today, so I told him. He didn’t seem like he wanted to run away, so that was good. He just told me that everything is going to be okay. I wish I could believe that, but I’ll let him believe that.

 I also met this other guy, and he came over the other day. I really like him. His mom is a breast cancer survivor, and me being sick doesn’t scare him away. That’s what I’m always most worried about. Time will tell whether that’s the case or not, but I’d like to think that it’s going to work out. He said he would like to come to chemo with me and my doctor’s appointments if I would let him. He’s really sweet and has been texting me really nice things.

My parents and my little brother visited this past weekend. I enjoyed their company. It was good to have them around. Especially my little brother. I didn’t think he was going to come, but I’m so glad that he did. We’re pretty much best friends.

Aside 29 Aug

My parents are coming tomorrow.

Stupid Cancer!

28 Aug

The other day I passed out in the shower and got a concussion. That’s just what I needed in addition to the shingles and bleeding and…well…cancer. A concussion. It’s like the little cherry on top! It’s actually more like a ‘kick me when I’m down’ kind of moment. But I like the cherry on top idea better. It works, too, because I don’t like those little red cherries. Anyways, I’m back at school, so it’s ok, I’m ok. I just have a massive headache and it’s kinda hard to concentrate, but we’re learning about cancer in class right now, so it’s not like that’s something I have no idea about. Ugh. I’m like the class ‘resident cancer expert’ so everyone is asking me for help with the carcinogenesis and neoplasms chapters. At least this cancer is useful for something.

I’m not producing enough of my own red blood cells, so I’m getting pretty anemic. It’s a problem with both myelosuppression and lack of EPO because of decreased kidney function. That’s most likely why I passed out. I threw up basically all day yesterday, so I didn’t even try to eat or even use the PEG tube. Or as Randi so affectionately called hers, “Peggy.” I am having a cup of tea right now, but I can tell that it’s not going to stay down. I’m already getting those waves of heat all over with the chills and cold sweats that I usually get when I’m going to throw up. My apartment is kind of a mess. I haven’t been putting my clothes away when I take them off..just haven’t really had the energy to do it, so there are clothes scattered about, and my parents are going to come visit me and my mom will NOT appreciate the condition my apartment is in. She’s the kind of person that before she comes over, I need to vacuum, dust, polish, and scrub everything or she’ll have to make some kind of comment. But then she usually winds up cleaning it. My clean and her clean are two completely different things. I don’t think I could ever clean up to her standards. I don’t know what she sees when she looks at things. But I don’t have the energy for all of that. I’ll just pick up my clothes and call it a day, and she’ll complain, and I’ll be like, ‘I was too tired’ and she’ll understand and clean for me. >_<

There’s this guy at school that likes me. He’s a first year, but he’s a year older than me. He wants to take me to dinner sometime. I haven’t told him that eating isn’t really a thing that’s high on my list, but…I suggested something else like the aquarium. I have a year pass, so i might as well use it as many times as I can before the year ends. Or maybe the art museum would be cool. I don’t know what he’s into, but I think he’d like just going anywhere with me. He’s lived in this city for years now, and I’ve lived here for a year. I haven’t gotten out much to explore the city, so he wants to take me to a few places to see some random things around here. Sounds cool to me. Oh, and he’s from Sudan and he has family there and in Egypt. It’s pretty cool. He also speaks 3 languages: Arabic, English, and some nubian language that I forgot the name of. English was his 3rd language, he learned it when he was about 12. It just feels nice to have some human connection and interaction like that in person again. I miss that. 🙂 He doesn’t know about all the health stuff and I don’t really wanna tell him and run him off, but it was kinda obvious I guess, and he didn’t seem to mind, but he doesn’t know any details or anything. Gah! Stupid cancer.

Weird.

25 Aug

I have a cousin that is basically throwing her life away. She’s smart, but she’s not using it. She’s not talking to family anymore, she keeps getting pregnant, and she’s in and out of relationships with men that are no good for her. I love her and all, and I wish she would move back home.

I had a dream that she helped me with my fashion sense/wardrobe, clean my apartment, kill roaches, do laundry and dishes, and get my life together. Then we ate corn dogs and peas. Weird.

I also had a dream that was too detailed to even try to write about.

My Dream Made No Sense At All

25 Aug

I was dying from cancer. I was having a very weird conversation with Jim on the phone. My dad got diagnosed with colon cancer, so I kept following him everywhere, and he got annoyed. I dressed up like a ballerina and took pictures of myself and ‘how things used to be’ before I got cancer. Then, I was Stewie from Family Guy going down a slide that cost 50¢, but I paid $21. It was for people 11 years old and under. It spun you around in your thoughts. Then I was me again watching telemundo and univisión with my friend from high school. Then we talked about a bunch of people in music videos with lots of colors as I ate from a jar of peanut butter and jelly swirled together while in church. After that, my mom took a history of my cousin Crystal’s life from her before she died. Then my cousin Malcolm and I started flying in circles around the room higher and higher. I was trying to get higher than him because I’m slightly older. He’s much taller, though, and I scraped the ceiling, so it didn’t work. Then I circled so fast and I jumped awake. It was startling.

The night before, I forgot that I also dreamt that I was in a new house with my family. My room was really small and inside of my brother’s room. Then I explored it more and discovered it was huge with it’s own other bedrooms and luxurious bathrooms. Then it became a bed store. I had to run back to the original room before time ran out and I lost it forever. The bathroom was in my brother’s room. Every room was full of old baby stuff from the last family that lived there. It was all shoved to the sides of the rooms. The shower had carpet and no walls, so I felt weird in there.

I had another dream that I was at an expo, and I dressed up in my dobok to go back to a taekwondo and MMA competition. It was also an ice skating, hypnotism, and ribbon twirling competition. I wanted to compete, but hadn’t fought in a long time, so I couldn’t. We looked at some clothes and hair ties they were selling at the expo and my mom got into it with a lady at the scarf table. We looked at some clothes and then went to watch the matches. We saw some guys fighting tirelessly and they were still going when we left. We watched my friends compete, and we sat next to this lady who claimed she loved me since the day she gave birth to me as she clung to me during the hypnotism routine. my mom then explained the details of my birth. The woman’s daughter and the woman went to the parking lot with us and they left. My mom and I got in her rental car. She had forgotten to cap the exhaust pipes. On my passenger side, I had a steering wheel and what I thought were brakes, too. It was just a shortbread cookie can. There was bluetooth hookup for your pager. It was a kind of old car.

My last dream was that I was at the hospital working with my mom. I was following her all over the place. We tested my dad’s kidney function and his heart function. Then she got a phone call and had to leave. I saved some medicine for one of her patients in the medicine cabinet at the office. Then she took me with her, though I was supposed to go with my dad. We posed for pictures with a dog on a tennis court, then we went through the halls of the hospital. I started to samba dance, and we saw all of these people in costumes ready to do a dance competition. We went into Dr. Niambi’s office, which was huge as in my dream she was the ‘queen of my medical school’ and we talked to some ladies about their children. My mom asked me to leave, and then they discussed ‘adult matters.’ I came back, and was asked why. I said I missed them, and they all cooed. We were then all dressed up. Will Smith was talking and his kids were playing in her water fountain getting all dirty. My dad and I moved away from them and took Dr. Niambi’s microphones out of her call box. She came back and started to sing, so my dad and I ballroom danced. We put her microphones back, and then my mom went into her office to discuss her partner dropping her from the practice to see whose fault it was. Then I woke up.