Tag Archives: breathing

My Cousin

14 Nov

I’m writing this for my cousin. She is awake for only short times a day. She needs help doing most things. But her brother got the neighbors to put up their Christmas lights and him and his dad helped them do it. She has trouble breathing and a lot of pain. For Christmas she got a blanket and pajamas and fluffy socks and she really likes them. She likes the Christmas music too. Christmas is her favorite. If you have questions I can answer them and tell her messages for you but she says hi.

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Fluid

1 Nov

My dad came and took me straight to the hospital. There was fluid building up in my lungs so I got a chest tube placed to drain it, so now I have that little bubbly thing. There was also fluid building up around my heart, so they did a pericardiocentesis to drain that. Plus to prevent more fluid from building up around my lungs, they’re gonna do a pleurodesis, which I’m pretty sure is gonna hurt. They’re basically going to intentionally scar the lining of my lungs with chemicals. I saw my mom, too. My parents were basically surprised by how bad I looked and got all emotional and stuff and it kinda freaked me out. My brother is coming with his girlfriend later. I missed him. But it’s not as hard to breathe now, I just hate being in the hospital.

Getting Harder

30 Oct

Something that I’ve noticed is that it’s getting harder for me to breathe while I lie down. I have to be propped up if I want to breathe well, and it seems like I have to be propped up increasingly more as time has gone on. I don’t know how bad this is going to get, and I haven’t fully addressed it with my doctor yet, because I really just don’t want anything invasive anymore or to be stuck in a hospital again. But I am kind of scared because it’s getting to the point that it’s just harder to breathe in general even with my oxygen, so now I definitely have to fully explain it to my doctor as it’s not only uncomfortable, but it’s frightening. It’s also hard to get decent rest while sitting up, though I have been sleeping pretty much ALL the time.

My pain has been well controlled, and I’m pleased with that. The pain medicines might be causing a bit of my nausea and lightheadedness, but it’s better than the pain. I haven’t really been keeping up like I should with my nutrition and staying hydrated, but I’ll make more of an effort. I’m trying really hard to get used to these Depends, but it’s hard and embarrassing to have to adjust to something like this. I haven’t been making many updates because I haven’t really felt up to it, but I will still try to keep updating.

My mom is going to take some time off of work soon and we’re going to do Christmas a bit early this year. That should be fun. I love Christmas. It’s my favourite.

Another Update

4 Jul

I wanted to update some more. So last night I had a pretty bad allergic reaction to a new medicine I was given, so then I got a bronchodilator and some IV benadryl. That kinda knocked me out last night, thankfully. I had a rash all over, and I was sweating (I was in a pool of sweat), which is odd for me as I’m usually super cold. I also was having trouble breathing, and my heart started beating really fast. I got some steroids, too, and with the combo of meds, they were able to stop the reaction, or at least make me sleep through it. Who knows, it was bedtime for me.

Then today, I’ve been so exhausted. Painfully exhausted! I can’t stay awake for very long at once, so I’ve been taking naps all day and I’m still exhausted. At least I have nothing to do. I’ve been having some pain. I actually went today, which was sickeningly painful. I threw up a bunch in the process, but I do feel a little better now. Sweet relief lol. I also had two seizures today. That’s not something new to me, but it’s something I’d gotten under better control until more recently. I guess with all the medicine changes, I have to balance those meds out again =\ more to do. Hopefully I get to go home tomorrow. My friend that was supposed to visit this weekend isn’t coming anymore. It’s a long drive, so I guess I don’t blame her, it just bums me out a little.

Nervous

27 Apr

It’s hard to breathe in general recently…even with the littlest bit of exertion. I feel super weak all the time, even writing can be tiring sometimes. I’m scared. I went to a school function last night, so today I’m extra wiped. I just felt nervous all day for some strange reason. Like waiting for the other shoe to drop.

Klutz?

25 Apr

I had to go back to the hospital because I was unable to breathe, but my breathing is better now. In addition to the pneumonia that I’m recovering from, the nodules in my lungs have grown, so it made for a very difficult time breathing.

In addition to that, because of the mass in my brain, I had some difficulty with coordination recently, and I fell and hit my head, which required a few stitches in my head. I’ve also been shaking a lot, and I’m not quite sure why, but my EEG was not completely normal. I’m not sure if this is a side effect of medications or because of the mass. It’s not constant, but when it happens it’s highly obnoxious.

Other than that and a headache, I’m doing better. Just very, very tired.

I Think I Ate a Desert

16 Jan

I have been so intensely thirsty recently! So much so that I wake up in the middle of the night and have trouble breathing because it’s hard to get my mouth open to properly, my tongue is all swollen, and my mouth just hurts! It’s bleeding some, too, which is no fun, obviously. Or…maybe I’m not exactly thirsty, per se, but my mouth is so dry!! Drinking water doesn’t help…the water just feels…dry. Water is like…the definition of wet, but somehow, when it’s in my mouth it feels dry. Like I may as well be consuming sand. I just wish I could remove my mouth and put it back on when it decides to act right. I wish that with a lot of body parts, really. You’d think with the extra water that I’d pee more, but…TMI alert btw…ok um…I can’t really pee! Every once in a while, yeah, but generally speaking, I can’t pee. Either I have trouble starting, keeping it going, getting it all out…or just can’t go in general, but it’s no bueno because I’ve been drinking more water because of the excessively dry mouth! The weird thing is…I really don’t have to go, I just feel like I should. Kidney issues, much? Ugh.