Tag Archives: chemo

Hi

19 Sep

Sorry for my absence. I’ve been feeling very overwhelmed, and I’ve been extremely tired. I’ve had a really hard time getting out of my bed, and I’ve missed my last 2 chemo appointments due to low blood counts that won’t seem to stay up anymore. I have had my exam week for school, and am not sure how much longer I can continue doing this. It’s been rough. I’ve spent much more time asleep than awake, and I’m strongly considering moving back home as I don’t think I can handle school anymore. This has made me pretty deeply depressed, and I’ve kind of withdrawn from talking to people a little bit. I’m really not sure how much more I can take, and I just want this all to be over.

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My Date

3 Sep

My date didn’t go as planned. It was raining, so we couldn’t go to the zoo. I suggested the aquarium, but then he said he couldn’t stay very long. I also was not feeling very well, so we just relaxed and had some tea. I didn’t get to know too much more about him, and it feels like it didn’t last long enough. It may have felt that way regardless of how long it was, though. Overall, I think it was a success, though. I say this because he wants to try for either the zoo or aquarium again next Sunday. So that’s gotta be good news, right? It didn’t come up about the cancer, so I didn’t tell him, but it came up when I saw him at school today, so I told him. He didn’t seem like he wanted to run away, so that was good. He just told me that everything is going to be okay. I wish I could believe that, but I’ll let him believe that.

 I also met this other guy, and he came over the other day. I really like him. His mom is a breast cancer survivor, and me being sick doesn’t scare him away. That’s what I’m always most worried about. Time will tell whether that’s the case or not, but I’d like to think that it’s going to work out. He said he would like to come to chemo with me and my doctor’s appointments if I would let him. He’s really sweet and has been texting me really nice things.

My parents and my little brother visited this past weekend. I enjoyed their company. It was good to have them around. Especially my little brother. I didn’t think he was going to come, but I’m so glad that he did. We’re pretty much best friends.

It’s Decided

25 Aug

After talking with my hospice home health nurse, it’s decided that I’m going to get TPN, hydration, and IV antibiotics from my apartment when she visits in addition to the blood draws, physical therapy, and personal care help. I’ll also get remote monitoring of vital signs since I’m a “high hospitalization risk” patient or ‘client’…whatever they want to call me. Then, I’m also going to get a volunteer that comes out to help me with other things around the apartment and takes me to chemo and stuff. That will be much needed. It’s still a little embarrassing to me personally…just needing all of this extra help, but if it helps me get through this without having to move back home, so be it.

First Day of School

12 Aug

So my first day back went pretty well. It was just orientation, so nothing difficult. It was SO tiring, though. I could sleep a thousand sleeps right now. Imagine when the lectures actually start…as in tomorrow! I have a fever and a headache, though. We got the lecture packets for the next 2 days for if we wanted to be gunners and pre-read. So…pew pew! I registered again with the office of student disabilities. I got my home health aide back, because I’ll need her in the evenings and on weekends because I’ll be tired and because of chemo and stuff. It’s kinda kicking my butt a little. It’s rougher than I thought it would be. I still haven’t figured out a way to get nutrition either. I got a waiver for my Hep B shot, since I can’t have shots like that right now. I called the company that mails me some of my medications, and apparently, my doctor never sent in one of my scripts yet, so I’ll have to call her tomorrow. It’s storming really hard right now. It stormed hard while we were in class, too, and knocked the power out for a second. I’m a little nervous about this school year. Looking at the packets and the books, it’s going to be really hard. They said so, too. I don’t know if I can really do this or if I was just kidding myself. I mean I know I could if I was healthy, but…I’m not. I’ll try my best, though. I’m in too deep to quit now!

Cycle 1 Begins

11 Aug

The day started with me feeling poorly, but I was pretty determined to make it through this day! I got a ride to the infusion center and got some blood work done. I got my port accessed and flushed, and I got some Tylenol and Ativan. When the blood work showed that my counts were okay, I started getting an IV anti-nausea medication and some fluids. At this point, I got a test dose of the Gemcitabine, and when I didn’t have an adverse reaction to it, I got the Gemcitabine infusion, which only lasts 30 minutes. I guess I shouldn’t have stayed up so late last night, because I was half asleep throughout this whole process. It was over relatively quickly, and I’m supposed to take the Sunitinib this evening. We will see how I feel then.

Clinical Trial

9 Jul

I talked to my onc today. Good news, I’ve been discharged! I’m also getting a home health aid through Hospice. My onc is working on a clinical trial that applies to me and that I qualify for…and it’s enrolling now, and I decided to go ahead and let him enroll me in it. My mom would really appreciate it. It’s in phase II. They’re trying Sunitinib in combination with Gemcitabine, which means I’ll be back to getting chemo through an IV and not just oral chemo, though Sunitinib is an oral one. I’m not quite sure how I feel about this, but I figure I have nothing to lose, right? Well, nothing but potentially quality of life. But quality schmality (sarcasm). It’s good, because there’s usually something that excludes me from clinical trials, but this one seems to be a little broader, so I qualify for this one. The trial is at the hospital that’s a little further, but it’s only a 10 to 15 minute drive away as opposed to the one I usually go to, which is 4 blocks away. It’ll be worth it, though. At least there’s something new to be hopeful about.

Chemo Plans

13 Apr

Man, my GI tract is ALL jacked up. Is that permanent? I stopped doing the weekly chemo infusions, just gonna stick with the oral chemo now. Dunno how exactly that will all turn out, but I’ll see in a few weeks, I guess. But good riddance, geez! Still gonna do the Zometa, though. I’m just sooooo dizzy right now, and I don’t really know why. Probably new meds.

Update

31 Mar

This headache is about to make me throw up 😦

…skipped chemo today >_< played a board game instead…woops, oh well!

Close, but no Banana!

28 Feb

Found out that my dad won’t be done with treatment this weekend. Bummer 😦

His WBC counts were too low for chemo on Monday (welcome to the club), so he got 2 Neupogen injections this week, and the chemo was pushed back to March 11th – 12th. He had a lot of skin irritation from radiation, so the 4 more days of radiation that he has were also pushed back. He’ll be getting them next week, Mon – Thurs. Since I have a lot of make up work and exams to keep up with and study for, my parents have been keeping me a little out of the loop with him, so that’s all I know for now. They’ll fill me in with more details later…once these exams are out of the way. That’s fine, I guess. I just like to know exactly how he’s doing. Makes me feel less anxious.

Updates on Daddy

23 Feb

My feet are on fire, omg! In other news…my daddy only has 1 week left of chemo and radiation, woot! He’s been doing surprisingly well with all of it. I mean he can’t taste and he has mucositis in the back of his throat, so he’s lost a lot of weight…but the radiation has given him a stunning tan ^_^ and he’s been trying to do some work here and there around the house since he hates being bored or just chilling…probs where I get that from. He’s also been trying to do some stuff in the yard, and wears this big floppy hat and lathers up in sunscreen to protect himself from the sun. It’s pretty funny.

He’s mostly just been desperately searching for something to eat that he can actually taste or that doesn’t taste awful…AND that doesn’t hurt as it goes down. He also said the anti-nausea meds they gave him makes him nauseous. Ugh. Otherwise he’s doing pretty well. 🙂