Tag Archives: Christmas

My Cousin

14 Nov

I’m writing this for my cousin. She is awake for only short times a day. She needs help doing most things. But her brother got the neighbors to put up their Christmas lights and him and his dad helped them do it. She has trouble breathing and a lot of pain. For Christmas she got a blanket and pajamas and fluffy socks and she really likes them. She likes the Christmas music too. Christmas is her favorite. If you have questions I can answer them and tell her messages for you but she says hi.

Getting Harder

30 Oct

Something that I’ve noticed is that it’s getting harder for me to breathe while I lie down. I have to be propped up if I want to breathe well, and it seems like I have to be propped up increasingly more as time has gone on. I don’t know how bad this is going to get, and I haven’t fully addressed it with my doctor yet, because I really just don’t want anything invasive anymore or to be stuck in a hospital again. But I am kind of scared because it’s getting to the point that it’s just harder to breathe in general even with my oxygen, so now I definitely have to fully explain it to my doctor as it’s not only uncomfortable, but it’s frightening. It’s also hard to get decent rest while sitting up, though I have been sleeping pretty much ALL the time.

My pain has been well controlled, and I’m pleased with that. The pain medicines might be causing a bit of my nausea and lightheadedness, but it’s better than the pain. I haven’t really been keeping up like I should with my nutrition and staying hydrated, but I’ll make more of an effort. I’m trying really hard to get used to these Depends, but it’s hard and embarrassing to have to adjust to something like this. I haven’t been making many updates because I haven’t really felt up to it, but I will still try to keep updating.

My mom is going to take some time off of work soon and we’re going to do Christmas a bit early this year. That should be fun. I love Christmas. It’s my favourite.

Starting Out the New Year with a Booooo! :(

1 Jan

I called the doctor, and he had me go to the ER (super lame), and they admitted me (even more lame!) so now I’ve spent Christmas AND New Year’s Eve/Day in the hospital. I’m hoping to get out soon. I would like to be able to go to school still this semester, and it starts…TOMORROW. I know I won’t make it to class tomorrow, but the notes are all online, so that’s fine, but I really would like to be able stay enrolled this semester. I’m still not really sure what’s wrong, but I got some broad spectrum antibiotic for some unidentified infection I suppose, and steroids to reduce swelling in my brain. My sodium levels also got really low, so I got mannitol, too. Fun stuff! Oh, and of course pain medications for pain. Can’t really go wrong with Dilaudid, so that’s how my holiday went. 

Habari Gani? Umoja!

26 Dec

Umoja means Unity!

Tonight’s principle means to strive for and maintain unity in the family, community, and nation. On this night, the black candle in the center of the kinara is lit. The kinara looks something like this, although there are variations in the base:

On this night, only the black one will be illuminated. Unity is the basis of success, and that is why it is the candle in the center, and the first night. It’s the candle that is always lit first and used to light all of the other candles. Once the candle is lit, you talk about unity and its importance…and that sounds like a perfect excuse to eat, right? Right. Dinner time!

Hospitalized for Christmas, But it’s Okay.

25 Dec
The nurses gave me some hats (stereotypical cancer patient gift), and they also did a little parade, it was cute! My dad had my cat call me on the phone, and he meowed lol. That was cute, as well. My mom brought me some juice she made, and it was really good! For Christmas, I also got a watch, more hats, and some sweaters, and I got my IV pole decorated like a Christmas tree haha…
My dad and I are going to watch a DVD later. I kind of want to watch The Sound of Music. I feel like singing.
Since I have the PEG tube now, I can just use that and pretend I’m eating whatever I want…like unicorn! …that was probably the fentanyl speaking, but whatever, it’s Christmas. Hugs 🙂
Merry Christmas, everyone!

Sad that Christmas is Over and There’s Nothing to Celebrate Until New Year’s?

25 Dec
Celebrate Kwanzaa!! I do! haha

Celebrate Family, Community, and Culture with me…All Cultures, mmk? Yes, Kwanzaa has roots in the black nationalist movement, and is founded in the African culture. The terms are in Swahili, but I am a multilingual African-American girl of many cultures, so I’m celebrating the holiday while embracing ALL cultures AND religions…so EVERYONE feel free to celebrate with me :).

The Nguzu Saba: The Seven Principles

Kwanzaa is seven days long. Each day represents a different principle, as you will see over the next week. It’s always celebrated from December 26th through January 1st.

  1. Umoja: Unity
  2. Kujichagulia: Self-Determination
  3. Ujima: Collective Work and Responsibility
  4. Ujamaa: Cooperative Economics
  5. Nia: Purpose
  6. Kuumba: Creativity
  7. Imani: Faith

The seven symbols used during Kwanzaa

  1. Mazao: Crops, Fruits, Vegetables
  2. Vibunzi: Ear of Corn
  3. Mkeka: Placemat
  4. Mishumaa Saba: The Seven Candles
  5. Kinara: The Candleholder
  6. Kikombe Cha Umoja: The Unity Cup
  7. Zawadi: Gifts

So What do I do?

A common greeting is Jambo! The celebration starts each day with inviting your loved ones who’ve passed away to celebrate with you, and then someone says Habari Gani? That means What’s the News? The reply to that question is the principle for that day. Details for each specific day will be posted that morning.

Lame Break is Lame!

22 Dec

So…crappiest break in the history of breaks 😦 this better improve, because it’s renal when I get back to school…ugh -__-

I don’t even know if I’ll be home for Christmas…I really wanna be home for Christmas, because I missed Christmas completely last year. I was down for the count, so to speak. Didn’t wake up at all that day. LAME! And I wanna do family stuff…and junk. I know my mom has to work on Christmas, but I at least want to hang out with my dad!

I just wanna leeeeeave! It just sucks, because I still feel absolutely awful 😦

Simple.

21 Dec

So I figured out that I don’t need to talk to my dad to show him that I care. I just need to hug him, lean my head on his shoulder when we’re sitting next to each other, watch a movie with him…that’s all there is to it!

I want to be able to be home (and awake) for Christmas this year. I want that.

I’m Home, Why Don’t I Feel Happy?

17 Dec

My dad and I are both getting PEG tubes tomorrow. Earlier, I kinda thought I was watching TV, but it took me 20 minutes to realize that I forgot to turn it on, and I was really just thinking while staring at the TV. I don’t really want to watch anything on television anyways. It’s all either stupid stuff, sad stuff, or infomercials. Merry Christmas, yay.