Tag Archives: fatigue

Another Update

4 Jul

I wanted to update some more. So last night I had a pretty bad allergic reaction to a new medicine I was given, so then I got a bronchodilator and some IV benadryl. That kinda knocked me out last night, thankfully. I had a rash all over, and I was sweating (I was in a pool of sweat), which is odd for me as I’m usually super cold. I also was having trouble breathing, and my heart started beating really fast. I got some steroids, too, and with the combo of meds, they were able to stop the reaction, or at least make me sleep through it. Who knows, it was bedtime for me.

Then today, I’ve been so exhausted. Painfully exhausted! I can’t stay awake for very long at once, so I’ve been taking naps all day and I’m still exhausted. At least I have nothing to do. I’ve been having some pain. I actually went today, which was sickeningly painful. I threw up a bunch in the process, but I do feel a little better now. Sweet relief lol. I also had two seizures today. That’s not something new to me, but it’s something I’d gotten under better control until more recently. I guess with all the medicine changes, I have to balance those meds out again =\ more to do. Hopefully I get to go home tomorrow. My friend that was supposed to visit this weekend isn’t coming anymore. It’s a long drive, so I guess I don’t blame her, it just bums me out a little.


27 Jun

This fatigue is whooping my butt like seriously. I’m so tired I can hardly function. For the research, all I’m trying to do is just sit and analyze data, but I can’t even power my way through that. It’s literally just Excel. Just getting myself to the bathroom makes me wanna lie down for a week, it’s awful! Hopefully this passes soon.

More Meds!

25 Jun

So the doctor upped my pain meds, which he was kind of reluctant to do at first because of my O2 sats going down and my liver enzymes being so elevated. That and the obvious kidney issues, he was worried about such a high dosage, but he did it, and it’s helping. I’ve been even more tired, though, because of it. I’ve been sleeping like crazy and still feeling exhausted. Like I can barely keep my eyes open, but it’s better than all that pain. I’m still feeling rather uncomfortable, but still…better.

I Just Need to Complain

24 Jun

I’ve been in a really bad mood all day. I guess it’s because I’ve been extremely tired and my everything just hurts so badly. It’s not that I’ve been angry, I’ve just been really upset about how exhausted I’ve been and how much pain I’ve been feeling recently, and today I’ve been having new pain that I wasn’t even having before. The skin on my hands is peeling, and the fatigue is kicking my butt! My head hurts, it hurts to breathe, my back hurts, it hurts to move, my stomach hurts, it hurts to eat or drink anything, my bones hurt, my skin hurts…I’m just a hot freaking mess. I can’t even get proper sleep because I keep having nightmares and the pain keeps waking me up. I really just feel like crying.


18 Jun

Is this the fatigue they warned me about, the Ambien not wearing off as fast, or am I just more tired than usual? Not really sure. Either way, I’m incredibly tired. It was a huge effort to hurl myself out of the bed and into the shower this morning. I almost passed out in the shower, so I had to sit down.I hate my naked skin touching the shower, so this was a big deal to me. It was hard to breathe, and I was shaking. If the shower wasn’t on, I probably would have been sweating. Then, I threw up right there in the shower. Gross. I wish I could just curl up in my bed and forget everything ever at least just for one day. I also wish I wasn’t so cold right now. Why is it so cold in here?

SRS Started

17 Jun

I started SRS today. It wasn’t too bad, and I even got to listen to music. I’m just pretty tired now. I had a lot of pain last night, and I’m backed up liked nobody’s business, and I’ve tried pretty much everything.


15 Jun

I start SRS for my lungs on Monday. I had my markers placed, my pre-treatment consultation, I’m going in 3 times, and I’m a little nervous. I know it’s not going to be a huge deal…I don’t think it’s going to be a huge deal, but I’m a little nervous about the fatigue that follows. I have research to do, places to go, people to see…well not really people to see, but I don’t want to be insanely fatigued. You catch my drift. I just want this to be over with as quickly as possible, and most importantly, I want it to work! A month from now I’ll get a CT to see if there’s any progress, and that’s the day after my birthday, so there better be some progress! The pain has been more under control recently, and so has the nausea, so that’s good. My parents are gone now, and hopefully we’ll get good news from my dad’s PET scan results ASAP. I didn’t get taken off of any meds, but I got the dosage lowered on one, so that’s good. I think that’s all for now.