Tag Archives: home health aide

It’s Decided

25 Aug

After talking with my hospice home health nurse, it’s decided that I’m going to get TPN, hydration, and IV antibiotics from my apartment when she visits in addition to the blood draws, physical therapy, and personal care help. I’ll also get remote monitoring of vital signs since I’m a “high hospitalization risk” patient or ‘client’…whatever they want to call me. Then, I’m also going to get a volunteer that comes out to help me with other things around the apartment and takes me to chemo and stuff. That will be much needed. It’s still a little embarrassing to me personally…just needing all of this extra help, but if it helps me get through this without having to move back home, so be it.

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First Day of School

12 Aug

So my first day back went pretty well. It was just orientation, so nothing difficult. It was SO tiring, though. I could sleep a thousand sleeps right now. Imagine when the lectures actually start…as in tomorrow! I have a fever and a headache, though. We got the lecture packets for the next 2 days for if we wanted to be gunners and pre-read. So…pew pew! I registered again with the office of student disabilities. I got my home health aide back, because I’ll need her in the evenings and on weekends because I’ll be tired and because of chemo and stuff. It’s kinda kicking my butt a little. It’s rougher than I thought it would be. I still haven’t figured out a way to get nutrition either. I got a waiver for my Hep B shot, since I can’t have shots like that right now. I called the company that mails me some of my medications, and apparently, my doctor never sent in one of my scripts yet, so I’ll have to call her tomorrow. It’s storming really hard right now. It stormed hard while we were in class, too, and knocked the power out for a second. I’m a little nervous about this school year. Looking at the packets and the books, it’s going to be really hard. They said so, too. I don’t know if I can really do this or if I was just kidding myself. I mean I know I could if I was healthy, but…I’m not. I’ll try my best, though. I’m in too deep to quit now!

Home Health Aide

10 Jul

I met my home health aide today. She’s going to come twice a week for now. She’ll do things like vitals and blood draws, helping me with personal hygiene stuff, maintaining my mobility and independence as much as possible with some exercises and stuff, pain management (super important), medication management, taking me to appointments, helping with food/nutritional needs, changing my bed sheets if I need her to…that one was a surprise, and keeping up with my medical record stuff so she can keep in contact with my onc. She seems really nice and I feel like I’ll enjoy spending time with her. Through the same program, they’re also offering me some other services like pastoral services, a physical therapist, their own social worker and patient advocate, a counselor, which I’ve been in need of even though I was turned off from the idea. I hope the counselor is good and that I click with them. I also hope they don’t try to give me any diagnosis of a problem that I don’t have like the last one who said she thought I had OCD. I swear I don’t…having some perfectionist tendencies does not make me have OCD. They offer some other stuff, too, but it was a lot to take in at once. Some other stuff is like bereavement and blah blah blah, but…yeah. I think I’ll benefit a lot from this extra help. It should hopefully keep me out of the hospital so often, goodness gracious! Ugh. And I think it will give my family some peace of mind knowing that there’s someone here to specifically help me.