Tag Archives: home health nurse

It’s Decided

25 Aug

After talking with my hospice home health nurse, it’s decided that I’m going to get TPN, hydration, and IV antibiotics from my apartment when she visits in addition to the blood draws, physical therapy, and personal care help. I’ll also get remote monitoring of vital signs since I’m a “high hospitalization risk” patient or ‘client’…whatever they want to call me. Then, I’m also going to get a volunteer that comes out to help me with other things around the apartment and takes me to chemo and stuff. That will be much needed. It’s still a little embarrassing to me personally…just needing all of this extra help, but if it helps me get through this without having to move back home, so be it.

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Overview of Today

24 Jul

My home health nurse came this morning and got me all set up and washed up and ready for the day…the day consisting of nothing but lying in bed (a skill I’ve recently perfected) and some delicious TPN. I have hives, and I don’t know why. I thought my dad and brother would be home with me all day, but they were both gone all day. My dad was working and running errands, and my brother was doing something S.C.U.B.A. related and then hanging out with his girlfriend for the remainder of the day.

When my dad finally came home, he started paying bills and then cooking while we watched Family Guy. After that, we watched Superman together, then America’s Got Talent, and finally So You Think You Can Dance. During this time, my mom came home. She came home angry. She became even angrier upon discovering that one of my GENERIC medications after insurance cost $65 for a week’s supply. She went off. She started cussing (my mom usually doesn’t curse at all) and yelling at everyone in the house. My dad and I just gave each other a “menopause is a b*tch” look. And my dad calmly agreed to take the medication back while my mom sorted through our insurance formulary information.

Speaking of insurance, the appeal that was “denied” was denied before they even got our appeal. Also, we may have sent it to the wrong address, so we will try sending it to the other address. Hopefully this works this time, because I’m too broke for all of this nonsense.

All in all, even though I was feeling depressed today, I’m so flippin’ glad to be home!

My Everything Hurts

8 Jul

My everything hurts:

  • My head
  • My eyeballs
  • My stomach
  • My skin
  • My back
  • My neck
  • My throat
  • My hands and feet

My mom wants me to try one more treatment option. It’s new. I don’t know if I want to I just feel so done, but I understand where she’s coming from. I guess I’ll ask about it, it couldn’t hurt I guess. I’ll ask about that and get the home health nurse at the same time. It’s not easy being by myself. It’s getting darn near impossible. I guess that’s why my body is just rebelling right now. Too much all by myself, maybe? Maybe I have too much downtime to just sit around and feel sick. At least when school was in I had a distraction. Things I absolutely had to get done before the next day, so I couldn’t sit and dwell on how I felt as much. Now that’s pretty much all I do, and it’s really depressing. Speaking of which, the depression was lifting for a while, and now I’m afraid that it’s coming back. I feel scared and anxious. I feel helpless and hopeless. I don’t know what to do right now. I gave up on counseling, and I haven’t been to see the psychiatrist in a while, either. I do go back to see her this month, which is good because I’m almost out of sleeping pills, which is making me anxious. I can take short naps all day, but I can’t get through the night without them no matter how tired I am. I don’t know if it’s the pain or anxiety that does it to me or a combination of both. My bone marrow is starting to give me problems, it’s because of the treatment. And I’m not making enough EPO, so that’s not making things any better. I’m so done with all of this, really. But I’ll try I guess for my family. I’m trying to find ways to talk to my brother now. Talk more seriously, I mean. We’ll see how that goes. My mom went and called all of my doctors, because I guess she’s upset and just wants to know what’s all going on.

Hospice?

5 Jul

I have some good news. Once I talk with the nutritionist, I’m getting discharged! My heart is looking good, and since I went yesterday, and my O2 sats are up, and I took a couple of laps around the unit, they’re gonna let me go! That’s really good, that’s great, but before that, I have a meeting with my social worker, Mags, and my patient navigator to talk about the benefits of Hospice. I talked with my onc already about the possibility of stopping treatment, but it’s something I’m going to have to think about for a while. I feel like Hospice would be super beneficial, but I can also think of some people who may be kind of upset if I choose to do that. Luckily, it’s not like I’m being pressured into making any kind of decision. I can think about it for as long as I want. It’s gonna take a lot of thinking and serious conversations, so I’m gonna talk to my parents about it in person when I go home. Also, Hospice has more than just a facility that you can go to, they have home health nurses and lots of other things that I’m gonna learn about today, so there’s that.