Tag Archives: hospital

Ugh

3 Nov

This ambien just isn’t doing it for me tonight. I have not been able to sleep and take advantage of this daylight savings time which I have been looking forward to. Also, I’ve really been craving wine recently. Weird. I just wanna sleep!!!! Plus, I have this rash all down my left leg and it’s driving me crazy! I have another rash like all around my port and I have no idea what that’s about but it’s kind of worrisome when stuff like that happens. I guess I’m in the right place for stuff like that to happen, though. Ugh.

Advertisements

Fluid

1 Nov

My dad came and took me straight to the hospital. There was fluid building up in my lungs so I got a chest tube placed to drain it, so now I have that little bubbly thing. There was also fluid building up around my heart, so they did a pericardiocentesis to drain that. Plus to prevent more fluid from building up around my lungs, they’re gonna do a pleurodesis, which I’m pretty sure is gonna hurt. They’re basically going to intentionally scar the lining of my lungs with chemicals. I saw my mom, too. My parents were basically surprised by how bad I looked and got all emotional and stuff and it kinda freaked me out. My brother is coming with his girlfriend later. I missed him. But it’s not as hard to breathe now, I just hate being in the hospital.

Getting Harder

30 Oct

Something that I’ve noticed is that it’s getting harder for me to breathe while I lie down. I have to be propped up if I want to breathe well, and it seems like I have to be propped up increasingly more as time has gone on. I don’t know how bad this is going to get, and I haven’t fully addressed it with my doctor yet, because I really just don’t want anything invasive anymore or to be stuck in a hospital again. But I am kind of scared because it’s getting to the point that it’s just harder to breathe in general even with my oxygen, so now I definitely have to fully explain it to my doctor as it’s not only uncomfortable, but it’s frightening. It’s also hard to get decent rest while sitting up, though I have been sleeping pretty much ALL the time.

My pain has been well controlled, and I’m pleased with that. The pain medicines might be causing a bit of my nausea and lightheadedness, but it’s better than the pain. I haven’t really been keeping up like I should with my nutrition and staying hydrated, but I’ll make more of an effort. I’m trying really hard to get used to these Depends, but it’s hard and embarrassing to have to adjust to something like this. I haven’t been making many updates because I haven’t really felt up to it, but I will still try to keep updating.

My mom is going to take some time off of work soon and we’re going to do Christmas a bit early this year. That should be fun. I love Christmas. It’s my favourite.

It’s Decided

25 Aug

After talking with my hospice home health nurse, it’s decided that I’m going to get TPN, hydration, and IV antibiotics from my apartment when she visits in addition to the blood draws, physical therapy, and personal care help. I’ll also get remote monitoring of vital signs since I’m a “high hospitalization risk” patient or ‘client’…whatever they want to call me. Then, I’m also going to get a volunteer that comes out to help me with other things around the apartment and takes me to chemo and stuff. That will be much needed. It’s still a little embarrassing to me personally…just needing all of this extra help, but if it helps me get through this without having to move back home, so be it.

Aside 24 Aug

Dammit, I’m bleeding again! I’m really hoping I don’t start bleeding any more than I am right now, cuz I’m really not feeling the whole “go to the hospital” thing. I just wanna stay in my bed. Just once, please!!

Blood and Shingles

23 Aug

Last night I wasn’t feeling very well, so I went to sleep a little early. I woke up in the middle of the night and felt really wet. When I looked at my pillow, it looked really dark, so I turned on the light and started choking. There was bright red blood all over my pillow and I was choking on blood. It was coming from my throat and coming out of my mouth. I went to the bathroom and kind of just let it drip into the sink while I called 911. I was scared…again. Things like this keep happening. I’m wondering if that’s a really bad sign or what. So I went to the hospital, and they did a bronchoscopy. They told me that there was a ruptured vessel in my lung, and that they gave me tranexamic acid, as well as did an embolization and used a laser during the bronchoscopy. I’m not choking up blood anymore, so that’s good.

Last night, I also discovered a very painful rash on my trunk area, and I didn’t know what it was. They noticed it as well, and I was started on an antiviral medication and some medications to treat the pain, as they believe that it’s shingles. I was really hoping that it wasn’t shingles. 😦 The medication that I’m on for the purpura rash should help the shingles to not be as bad, though. I hope that’s true!

New News

20 Aug

I’m having a lot of bone pain in my pelvis and hips today and getting these weird sharp headaches that last for like 5 seconds on the left side of my head. My right eardrum was like…vibrating, too, and it was very uncomfortable. I had a little bit of tea and a cracker today, so that’s a lot of progress! I didn’t even throw it up. Maybe tomorrow, a piece of toast, who knows? I’m feeling so exhausted, I can hardly function. And my mom called me at like 10:30 last night when I was just…about…to fall…to sleep. Darnit! I usually go to sleep later, though, so she didn’t know. I called the hospital about my bill to ask for a student application for charity form. I can apply for them to forgive my bill. If that doesn’t work, then I can be on the sliding scale since I have no income, and only have to pay like 35% of the bill or something. I got tutored in pharmacology today, and it went really well. Since some of my classmates are tutors, they get paid for helping me study, and it’s free for me. So that means it’s a win-win for both of us! I got into a study group to do practice questions later on this week, too. I got some of my textbooks I ordered in the mail, too, so I got excited in the nerdiest of ways.

There was a shooting at an elementary school here in Atlanta. With an AK-47. Why can people even get those? What are they using them for? I don’t understand why anyone would shoot up a school, but especially an elementary school. It was a grown man, too…not a kid who brought their parents gun to school to like show their friends or something. There are some truly sick people out there. He told them to call some TV station. Did he do this just to get on TV? He’s been arrested now. Anyways, rant over. I’m gonna finish watching So You Think You Can Dance.

Full of Suck

11 Aug

So I have this bill from a procedure I had in February, which my insurance decided not to cover. I’ve posted about it before, that they denied the appeal. This is because the doctor said she was in my insurance network, but she wasn’t. This is the worst insurance I’ve ever had, but at least I have insurance. So she waved her fee, but I still have the hospital fee, and my mom can’t afford to pay it, so I have to pay it with my student loans. No bueno. The whole reason I saw this particular doctor in the first place was because I thought she’d be cheaper than the out of network doctors here. This is really crappy. Insurance companies are full of suck.

Again

27 Jul

Hi I’m again in the hospital since last night because seizures, nosebleed, and vomiting. I did not want to go, but my mom and brother insisted and took me. On the way they keep arguing about everything and that hurts my head. They always argue because they both like to be right. Since the hospital, I get there and get a CT scan with and without contrast to see the brain tumor. That is causing the ataxia, vomiting, and headaches. It grew a little but not much. I cannot do SRS on it so that I qualify for the clinical trial. God, it better work. It starts Aug 11 for me. My 1st cycle. Pray it goes well, please? Here at the hospital, they’ve been able more to control the seizures so I have different seizure medicine combination to go home with. I’m just very scared and I wonder how many times I can go home. I am being super candid right now: I do not want to die in a hospital. Please no. I mean if I do die, you know? There is a rush to fix everything but maybe the last time I know they cannot fix it how I like so I leave it broken and go to sleep. Just a thought. That thought is over now. The trial is back at school, so I will be back there again, but my daddy will visit often. I love him.

ER Trip

25 Jul

I had to go to the hospital again last night because my heart was beating out of whack and my fever shot back up again. I’m back home and doing okay now. I’m going to spend the day with my brother and with my mom when she gets home.