Tag Archives: hydration

Getting Harder

30 Oct

Something that I’ve noticed is that it’s getting harder for me to breathe while I lie down. I have to be propped up if I want to breathe well, and it seems like I have to be propped up increasingly more as time has gone on. I don’t know how bad this is going to get, and I haven’t fully addressed it with my doctor yet, because I really just don’t want anything invasive anymore or to be stuck in a hospital again. But I am kind of scared because it’s getting to the point that it’s just harder to breathe in general even with my oxygen, so now I definitely have to fully explain it to my doctor as it’s not only uncomfortable, but it’s frightening. It’s also hard to get decent rest while sitting up, though I have been sleeping pretty much ALL the time.

My pain has been well controlled, and I’m pleased with that. The pain medicines might be causing a bit of my nausea and lightheadedness, but it’s better than the pain. I haven’t really been keeping up like I should with my nutrition and staying hydrated, but I’ll make more of an effort. I’m trying really hard to get used to these Depends, but it’s hard andĀ embarrassingĀ to have to adjust to something like this. I haven’t been making many updates because I haven’t really felt up to it, but I will still try to keep updating.

My mom is going to take some time off of work soon and we’re going to do Christmas a bit early this year. That should be fun. I love Christmas. It’s my favourite.

It’s Decided

25 Aug

After talking with my hospice home health nurse, it’s decided that I’m going to get TPN, hydration, and IV antibiotics from my apartment when she visits in addition to the blood draws, physical therapy, and personal care help. I’ll also get remote monitoring of vital signs since I’m a “high hospitalization risk” patient or ‘client’…whatever they want to call me. Then, I’m also going to get a volunteer that comes out to help me with other things around the apartment and takes me to chemo and stuff. That will be much needed. It’s still a little embarrassing to me personally…just needing all of this extra help, but if it helps me get through this without having to move back home, so be it.