Tag Archives: medications

Hello

17 Oct

Hi everyone, just wanted to make an update.

So the past couple days have been relatively okay. Just a few complaints. My mouth is so dry. I’ve been using the biotene products, but it’s not helping as much as I want it to. It’s so dry it hurts and I have the most awful taste in my mouth. And the nausea, probably from the pain medicines, and there’s this heartburn that won’t go away. It’s getting more and more intense. It was just an inconvenient gurgle at first, but now it’s like the pits of hell are rumbling up through my insides. I’ve been in my bed for most of the time…probably too many hours out of each day. I need to get up and do stuff, I think. I’m pretty sure it’s the depression. Maybe the fact that I’m always exhausted and always sleeping. But otherwise, not too bad.

On a happier note, my little brother got a new cell phone, and it’s lime green, so now we can text each other pictures and we can just…text more. So that is good. My dad and I had a good talk yesterday. My pain meds are working pretty well. I’ve made a classical music playlist that I like to listen to sometimes, and it’s just kind of relaxing. I also really like that song Royals by Lorde. My dad is doing fantastically well, still having dry mouth. He has to drink water and swish it around in his mouth when he eats food so that he can swallow it. But other than that, he’s doing fantastically. So, yeah, that’s my update.

Another Update

4 Jul

I wanted to update some more. So last night I had a pretty bad allergic reaction to a new medicine I was given, so then I got a bronchodilator and some IV benadryl. That kinda knocked me out last night, thankfully. I had a rash all over, and I was sweating (I was in a pool of sweat), which is odd for me as I’m usually super cold. I also was having trouble breathing, and my heart started beating really fast. I got some steroids, too, and with the combo of meds, they were able to stop the reaction, or at least make me sleep through it. Who knows, it was bedtime for me.

Then today, I’ve been so exhausted. Painfully exhausted! I can’t stay awake for very long at once, so I’ve been taking naps all day and I’m still exhausted. At least I have nothing to do. I’ve been having some pain. I actually went today, which was sickeningly painful. I threw up a bunch in the process, but I do feel a little better now. Sweet relief lol. I also had two seizures today. That’s not something new to me, but it’s something I’d gotten under better control until more recently. I guess with all the medicine changes, I have to balance those meds out again =\ more to do. Hopefully I get to go home tomorrow. My friend that was supposed to visit this weekend isn’t coming anymore. It’s a long drive, so I guess I don’t blame her, it just bums me out a little.

Painsomnia

3 Jul

I’m up again at the butt-crack of dawn because I can’t sleep. Hospitals are awful for sleep, and pain is hard to sleep through. The sleeping meds wore off, and it’s about time for more pain meds…I can tell. I have a fever and my blood pressure is really low now, go figure. My O2 sats are low, too, so more oxygen for me. Can’t really leave until that’s under control…and until I go…who knows when that’ll be. The physical therapy lady should be coming in this morning and making me do some laps, which I’m actually not looking forward to even though I really do wanna get out of this bed. The list of things I can’t eat has gotten even longer, so I mostly just have a short list of things I can eat for now. It’s really just liquid things, so by eat, I mean drink or slurp or however I choose to ingest it. That’s about all for this morning report.

SRS

15 Jun

I start SRS for my lungs on Monday. I had my markers placed, my pre-treatment consultation, I’m going in 3 times, and I’m a little nervous. I know it’s not going to be a huge deal…I don’t think it’s going to be a huge deal, but I’m a little nervous about the fatigue that follows. I have research to do, places to go, people to see…well not really people to see, but I don’t want to be insanely fatigued. You catch my drift. I just want this to be over with as quickly as possible, and most importantly, I want it to work! A month from now I’ll get a CT to see if there’s any progress, and that’s the day after my birthday, so there better be some progress! The pain has been more under control recently, and so has the nausea, so that’s good. My parents are gone now, and hopefully we’ll get good news from my dad’s PET scan results ASAP. I didn’t get taken off of any meds, but I got the dosage lowered on one, so that’s good. I think that’s all for now.

Catch Up

13 Jun

I’ve been hanging out with my parents for the last few days, because they’re visiting me. We went to the art museum, took a nap, I went to the lab…but at the lab I passed out and hit my head. Nothing major, just bruised. I finished my 24 hr MTT, though, and I’m doing my 48 hr today and my 72 hr tomorrow. So today my parents and I went to the mall and I got 2 shirts which are really cute. That’s where I’ve been and what I’ve been doing. My stomach, chest, and back been hurting quite a bit, but since my parents are here it’s ok. I have an appointment tomorrow morning with the oncologist and one Saturday morning with the psychiatrist. Hopefully, I’ll get taken off one of the medications. We’ll see.

Making Progress

4 Jun

Hello! I went to my research orientation part II today and learned about bioinformatics, research papers, research grants, and poster presentations. It was kind of long and boring, but tomorrow I start the good stuff!

So the counselor called me today asking why I didn’t want to continue with her. It was awkward. Then I went to the psychiatrist and she basically asked me the same thing. They both were trying to convince me to still see her, but I definitely don’t want to. I don’t know what to say to them to convince them that I don’t want to see a counselor. I got my meds refilled, too, so that’s good. I also talked to my oncologist and got another anti-nausea med added to what I’m already taking. I’ll have to take meds more often than I already do, but I guess it’ll be worth it.

Not Now

31 May

My depression medicines are working, and I feel mostly normal again, but I ran out, and I still feel a little too anxious to call the psychiatrist. I also wanna cancel the appointment with the super expensive weird counselor, but I feel too anxious for that, too. I’m just gonna do it, but like…not now lol.

Side Effects

5 May

Apparently, shaking is a side effect of a few of my medications. Just great. My handwriting has gone to crap! I’m sick of all these side effects, they’re the worst part of the whole thing, I think.That and being terribly depressed. But I went to church today, that was nice.

Klutz?

25 Apr

I had to go back to the hospital because I was unable to breathe, but my breathing is better now. In addition to the pneumonia that I’m recovering from, the nodules in my lungs have grown, so it made for a very difficult time breathing.

In addition to that, because of the mass in my brain, I had some difficulty with coordination recently, and I fell and hit my head, which required a few stitches in my head. I’ve also been shaking a lot, and I’m not quite sure why, but my EEG was not completely normal. I’m not sure if this is a side effect of medications or because of the mass. It’s not constant, but when it happens it’s highly obnoxious.

Other than that and a headache, I’m doing better. Just very, very tired.

Chemo Plans

13 Apr

Man, my GI tract is ALL jacked up. Is that permanent? I stopped doing the weekly chemo infusions, just gonna stick with the oral chemo now. Dunno how exactly that will all turn out, but I’ll see in a few weeks, I guess. But good riddance, geez! Still gonna do the Zometa, though. I’m just sooooo dizzy right now, and I don’t really know why. Probably new meds.