Tag Archives: NED

PET Scan Poopers

29 May

My dad was supposed to have his post treatment PET scan tomorrow, so he took today off of work and avoided carbs and tried to figure out what to eat today. WELLLLL, right after he got back from the grocery store, the office called and said that they never got the referral and won’t have it by tomorrow, so he’s NOT having the PET scan tomorrow. Needless to say, my dad’s a little upset about that since he changed his whole schedule around, so now he’s getting it next week, which means doing this over again next week. It could be worse, but it’s just inconvenient. Still hoping and praying for the same good results that his last MRI gave us!

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Good News!!

19 Apr

Ok, today seemed like a complete failure at first. I talked to my friend at school. I was getting there and it wasn’t raining. As soon as I stepped outside, BAM rained all over me. Poured rain. I was soaked and cold. They keep it freezing in that building, too. But when I got inside, my dad texted me that he just wanted to tell me he loves me <3.

Anyways, she gave me the advice of picking a scripture a week to go by that applies and really speaks to me that week. This week, I’ll go with that declaration I posted. Next week, I’ll go with a scripture. She also told me to pick one goal for each week and just focus on that one thing. This week, I’m going to try not to be irritable with my friends. I’ve been doing that, and I don’t want to. That’s not me. So, I’m going to consciously make an effort not to do that. We talked for about an hour and a half. She has anxiety, too, and was telling me how she copes with everything, that I’m not alone, and that more people deal with these kinds of things than I know. She said she was glad I talked to her and to talk to her anytime. That helped a lot. Plus I got the grade back for my exam that I took yesterday. I passed! I got a 74!! Not too shabby.

Also, my dad gave me good news! I talked to my daddy just now, and he said that his doctor said it looks like everything is gone!! Woohoo!!!! He had an MRI and it showed that he was all clear, and in 6 weeks, he’ll get a PET scan. YAY!!!!! Best news I’ve heard in a very long time. Maybe ever. Yeah…ever.

So in conclusion, today is not a failure. I may still be crying today. I may still feel lonely. I may still be in physical pain. But today is also good.

Medicated Stream of Consciousness

28 Jan

I talked to my social worker and some other people, we looked at the advanced directives stuff and power of attorney stuff again to see if I wanted to update anything. I feel like that’s a bad sign, is that a bad sign? I keep getting these bad signs, and I’m not sure if it’s just me taking things the wrong way, or if they’re trying to off me! Like their goal just seems to be “progression free” and no one is saying anything like “NED” or “remission” or “cure.” I don’t know if their vocabulary is going to switch up later on, or if those are just not…options for me. I mean, I knew this was going to be a kind of longer term thing, but…uh…I’m like legitimately scared. I’m probably just overanalyzing each individual word and on too much medication, I dunno.