Tag Archives: nutritionist

Hospice?

5 Jul

I have some good news. Once I talk with the nutritionist, I’m getting discharged! My heart is looking good, and since I went yesterday, and my O2 sats are up, and I took a couple of laps around the unit, they’re gonna let me go! That’s really good, that’s great, but before that, I have a meeting with my social worker, Mags, and my patient navigator to talk about the benefits of Hospice. I talked with my onc already about the possibility of stopping treatment, but it’s something I’m going to have to think about for a while. I feel like Hospice would be super beneficial, but I can also think of some people who may be kind of upset if I choose to do that. Luckily, it’s not like I’m being pressured into making any kind of decision. I can think about it for as long as I want. It’s gonna take a lot of thinking and serious conversations, so I’m gonna talk to my parents about it in person when I go home. Also, Hospice has more than just a facility that you can go to, they have home health nurses and lots of other things that I’m gonna learn about today, so there’s that.

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Tummy Troubles

3 Jul

Because of all the stomach problems I’ve been having recently, my doctors recommended that I cut dairy, gluten, and soy out of my diet. That’s a lot of things to avoid. Like…I can’t replace milk with soy milk or with almond milk because I’m allergic to almonds…so no milk for me. Unless there’s something else that I don’t know about. I have to take more medicines to help with the issue, and right now it’s only liquids for me. Hopefully that won’t be for long, but in the meantime, I have no idea what I’m supposed to eat! I’m going to meet with a nutritionist before I leave, so they’re not just leaving me hanging, but I’ve just been sitting here thinking like…what in the world am I going to eat…drink? Water.

Psychedelic Rainbow Turbo Squid Party in my Head

28 Jan

Apparently, I lost 5 lbs this weekend. My hem/onc was not pleased about it because the whole point of using the PEG tube was to¬†gain¬†weight…but if I know my body, it’s going to do exactly the opposite of what it’s supposed to. Maybe he should have put me on a diet…some reverse psychology could have worked? I dunno, just a thought. But if I know about it, is it really reverse psychology?

Anyways…I’m apparently on too much Dilaudid and IV Benadryl to have coherent thoughts right now? It’s like a psychedelic rainbow turbo squid party in my head. At least that means that I’ll be able to sleep tonight! That’s good, because my stomach is killing me!! Ugh. My lung nodules apparently like…grew or whatever. I was hoping for only good news since I started this new med for the mRCC in December. Some good news, though, is that I have been able to pee! Ok, maybe I didn’t need to share that? Ah, what the heck!

Anyways what was I saying…so I could have lost 5 lbs from having a fever and stuff and my body needed extra “juice” to keep it chugging. I’m supposed to keep eating with my mouth, too…you know, so I can still swallow and stuff later, but…I don’t wanna! It hurts and it’s just exhausting. Plus, I’m really not hungry. Pretty sure I don’t do enough in a day to work up an appetite. Well…except for when Prednisone is involved. Then, it makes me wanna eat anything ever.

They had me talk to the nutritionist, and she didn’t tell me anything I didn’t already know, but she’s nice, so…you know, whatever and stuff. Plus, now I have to eat on a neutropenic diet type thing until my counts come back up. Chemo kinda obliterated them. Makes it hard to actually know what to eat and what not to eat, so then I just get frustrated and say forget the whole thing and just do the PEG tube stuff. And I’m supposed to like…not have a lot of sugary things, I think cuz tumors like glucose, but not too much protein or anything acidic really, cuz my kidney is in the process of failing, and no fresh fruits or veggies because of my blood counts, but they said cooked veggies generally don’t have enough calories, and when you cook them, you lose a lot of the nutritional value…I feel like instead of telling me what NOT to eat, they should tell me what TO eat. I’m also having some irritation in my mouth and GI tract that just makes anything involving food kinda miserable, and once I get past the “eating” part of it…well don’t even get me started on what happens after that. No one wants to know. I don’t really know where I was going with this, so I guess I should stop before I divulge too much information lol. Kthxbai!