Tag Archives: sad

Chemotherapy Today

18 Aug

 So, I had chemo today. It was kind of not a good experience, because I was already throwing up and feeling so weak last night that I couldn’t really make it to the bathroom. My aide came in the morning to help out and she took me to chemo, where I got lots of fluids. I keep getting so dehydrated. I don’t mean to let that happen, I just can’t keep anything down. I got a new medicine that should help me be able to eat, it came in the mail the other day, so hopefully that help with the dehydration, too.

I feel really weird that the nurses have to put on all this gear just to administer this medicine, and it’s going straight into my veins. Like, that can’t be safe, right? I don’t know how much hope I have that this trial is going to work. Certainly not as much as some of the people around me, but they have to have hope for me. It’s all they can do. And this is the last thing we’re trying, so everyone is kind of placing their eggs in one basket if you know what I mean.

I just want a chance to feel normal, and this trial can take up to a year. A year of this is certainly not going to be normal. Not even close. Maybe I’ll get used to it, and maybe the side effects will stop being so bad, but I have a feeling that as the toxicity builds up, it’ll be the other way around. I really want to be able to finish school, and I don’t know if that’s going to happen. I’m already feeling like I can’t do it. I’m already doubting myself. I’m also starting to feel like maybe I won’t make it to graduation, so maybe all of this is pointless. Maybe I’m just overthinking things, but I really don’t have anyone to talk to about these things. Not in person at least. I don’t have a lot of support here where I am, so it feels like I’m doing this by myself sometimes. That’s a really lonely feeling. I’m trying to push through, but there’s only so much I can do, and I don’t exactly know when it’s time to stop, but I don’t know if I will. How do you know something like that? I do want to stop. Kind of. I also don’t.I have been thinking about dying a lot. I’m scared that it will hurt. I’m scared that I’ll miss things. Important things. My brother just turned 18. He wants to go into the Marines, and then he wants to become a police officer. I wonder how much of that I’ll get to be a part of. It’s hard with this uncertainty always hanging over my head. I try to stay in the present, but how can I? I’ve been planning for my future my whole life, and now it might be taken away. That hurts. I’ve wanted to be a doctor for so long, but the process just takes so incredibly long, that I may not see the end of it. People keep suggesting alternative treatments and diets to me, or eating soursop and all of that, but I can’t even eat, I can’t change my diet much, because I can’t even figure out what stays down in the first place! My classmates are going out to eat, having parties, and doing all of this fun stuff, and I’m unable to participate in the majority of it. It just doesn’t seem fair. I know that life isn’t fair, but…you can’t help wanting it to be.

I should really get back to studying now. I have to study for microbiology, pharmacology, pathology, and I don’t think I have much to do for fundamentals of medicine, but I do want to see if I can get to reading some more of Robbins. It’s hard to do today. It’s hard to concentrate, because I’m just so tired, and I feel so sick to my stomach. I found out one of my friends from when I was younger got married and had a baby. She has two kids now. A lot of my friends are getting engaged, married, and having kids. I’m just sitting here having cancer. A lot of my classmates are getting engaged, too. I’m happy for them, but every time one of them gets engaged, it just reminds me of how lonely I am. I know I’m rambling, and the flow of this entry makes little sense, but that’s what I need right now. Just to vent in whatever way I want. Like I said before, I’m not a write. This isn’t article quality. Just some random thoughts of a sick student. I keep wishing life were different. I keep thinking how different they’d be if I were healthy right now. How good my grades would be, and how much easier it would be to make friends. Maybe I would even be asked on a date. Who knows. I can’t keep living in “what ifs.” It only makes things worse.

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Major Rambling Alert

5 Feb
Having another down day today. I talked to the counselor here, and…I’m pretty sure I felt worse afterwards. It wasn’t anything she said, but I just kind of thought she would help more or…it just made me think of all the things I’m depressed about at once, I guess. All I know is that after the appointment, I couldn’t stop crying…and I didn’t expect for it to be like that.
I tried reaching out to a classmate of mine, but he said that since he has to wake up early tomorrow he can’t talk…and it was like…6 PM. I mean, I’m sure he’s busy or whatever, but I don’t think that was the problem. I think he was just…uncomfortable maybe? I don’t know. I just…he said I could call him whenever I need to talk, so I did…and yeah, I guess I can’t actually call him whenever. So……..that made me feel even worse, and then I fell asleep for a little.
I’ve been so tired recently. I pretty much slept all day, and still could hardly force myself to wake up for the appointment today. I usually have trouble sleeping, but now it’s harder to stay awake. I’ve had a lot of pain today, too. And uh…had a bit of an “accident” which was super embarrassing. I have some nerve damage from the bowel resection surgery I got, and so…yeah, that happens sometimes.
I can’t eat any food right now, so it’s all IV nutrition. I’m ok with this, because eating is just complicated now, but I’m sure this won’t help with the weight issue…but I guess that’s the least of my worries today. But…I am kind of craving a “cutie” now…you know those little oranges that are super easy to peel and they’re small and adorable?
Yeah, that.

What Do We Say?

24 Jan

I think my little brother is depressed. I don’t really know what to say to him, either. He’s just…sad. We’re really close, so we used to talk to each other all the time about everything and laugh at stupid stuff together, but now we don’t even know what to say to each other anymore. We hardly talk anymore. When we do it’s awkward. My whole family, really. We try to pretend that things are normal, but I think we overdo it sometimes. Kind of like when people who are secretly kind of racist try to act like they’re not racist, and they wind up coming off as racist because they overdo it. It’s like that. I don’t really know what to do or what to say. I just want him to be happy, and I don’t have any idea what to say to him or if that’s even possible. He’s been just participating in tons of hobbies and hanging out with friends all the time for distraction purposes, I think. But I guess, it’s not enough anymore.

Scared and Alone

23 Jan

In college, I had good friends that I could count on. A (co-ed) fraternity full of them, in fact! Now that I graduated, I live in a different city, and they’re all so far away. I don’t talk to too many of them anymore, and I don’t really have any friends here. Most people check up on me every once in a while, but it’s usually a text asking how I’m doing, and once I answer, then they feel they’ve satisfied their duty as a friend for a few weeks, and I don’t hear from them for a while. Maybe they just think I’m too busy to talk or that I want to be left alone, but I don’t, and I’ve tried to express that. Maybe I’m being too needy, expecting too much of people that have their own things going on right now. I mean, I probably am, but it’s just how I feel, and it’s hard to change that. I have one friend from college that I do keep in touch with on a regular basis, but she lives 7 hours away, so I can rarely see her. I just feel so lonely here. My family is amazing and they’re great people, but they’re just so stressed that they’re a little absent-minded as of late, and it feels like I’m talking to a wall when I try to talk to them. I’m sad pretty much 90% of the time, mostly because I’m doing this somewhat alone, though not completely. I probably feel more alone than I actually am, but that still hurts. Even texting doesn’t seem like quite enough on the really bad days. I’m the kind of person that…I just want to be in the company of a good friend, and that by itself tends to make me feel better. I’m really just scared and alone. That’s how I feel right now.

Blowing Sunshine?

13 Jan

I’ve been letting myself feel how I feel recently instead of forcing myself to feel happy and “blow sunshine” as a friend of mine so eloquently put it. Letting myself have some time to feel upset has actually been making all the other days happier. Maybe it’s just by comparison, but either way, I feel happier for it.

I do know I’ve been able to appreciate everything more recently. All the little things have become big things, and then the things that seemed like a big deal before…seem like little things now. My family and I sat down and had the “Advanced Directives” talk again pretty recently. Every one of us expressed our wishes on what we would prefer under certain circumstances, including my little brother (the only one to not have it all in writing…besides the cat, of course). And then…I think to lighten the mood a little, we went into really outrageous and unlikely circumstances, asking what we would do in those cases. Made it less awkward, I think.

Rambling On…

28 Dec

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They’ve actually decided not to have my dad treated at Moffitt, but he’s going to basically use the protocol suggested there, and be treated closer to home. We need all the prayer we can get right now. For one, all of this is really confusing with different doctors suggesting different things, and then it’s also really stressful and scary. I’m just trying to hold it together. It’s really hard to tell my parents exactly how much everything hurts or how scared I am, I don’t want to make them sad or nervous or anything, when at the same time I know that they want to know. And then I feel like my parents are always somewhere else in their heads…and rightfully so, but it’s hard to talk to them sometimes and feel like I’m getting their full attention. This whole thing just seems very isolating, because my little brother has been avoiding everyone a bit, and people are just kind of frustrating me for one reason or another. I don’t really know if it’s me or them to be honest. It could be me. I could very well just be irritable. I can’t really tell. Either way…my CT scans came back, and it showed more growth since the last scan, so the Votrient wasn’t quite doing the trick, so hopefully the Inlyta and Zanosar work, and my weight dipped down into the double digits during this last hospital stay, so I have to try to get it back up quickly…somehow…without consuming too many carbs or too much glucose in general since tumors feed off of that. Mission Impossible! Glucerna straight into my PEG tube, maybe?

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RIP, Ricky

19 Dec

You had balls, dude. Love you.

I’m Home, Why Don’t I Feel Happy?

17 Dec

My dad and I are both getting PEG tubes tomorrow. Earlier, I kinda thought I was watching TV, but it took me 20 minutes to realize that I forgot to turn it on, and I was really just thinking while staring at the TV. I don’t really want to watch anything on television anyways. It’s all either stupid stuff, sad stuff, or infomercials. Merry Christmas, yay.

Whole Body Bone Scan @ 8:30

23 Nov

It’s feels like all the weight of this past few months is coming down on my shoulders, clouding around my ears right now. It’s stifling, and I’m not quite sure how much more of this I can handle. Emotionally or physically.