Tag Archives: tpn

It’s Decided

25 Aug

After talking with my hospice home health nurse, it’s decided that I’m going to get TPN, hydration, and IV antibiotics from my apartment when she visits in addition to the blood draws, physical therapy, and personal care help. I’ll also get remote monitoring of vital signs since I’m a “high hospitalization risk” patient or ‘client’…whatever they want to call me. Then, I’m also going to get a volunteer that comes out to help me with other things around the apartment and takes me to chemo and stuff. That will be much needed. It’s still a little embarrassing to me personally…just needing all of this extra help, but if it helps me get through this without having to move back home, so be it.

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Overview of Today

24 Jul

My home health nurse came this morning and got me all set up and washed up and ready for the day…the day consisting of nothing but lying in bed (a skill I’ve recently perfected) and some delicious TPN. I have hives, and I don’t know why. I thought my dad and brother would be home with me all day, but they were both gone all day. My dad was working and running errands, and my brother was doing something S.C.U.B.A. related and then hanging out with his girlfriend for the remainder of the day.

When my dad finally came home, he started paying bills and then cooking while we watched Family Guy. After that, we watched Superman together, then America’s Got Talent, and finally So You Think You Can Dance. During this time, my mom came home. She came home angry. She became even angrier upon discovering that one of my GENERIC medications after insurance cost $65 for a week’s supply. She went off. She started cussing (my mom usually doesn’t curse at all) and yelling at everyone in the house. My dad and I just gave each other a “menopause is a b*tch” look. And my dad calmly agreed to take the medication back while my mom sorted through our insurance formulary information.

Speaking of insurance, the appeal that was “denied” was denied before they even got our appeal. Also, we may have sent it to the wrong address, so we will try sending it to the other address. Hopefully this works this time, because I’m too broke for all of this nonsense.

All in all, even though I was feeling depressed today, I’m so flippin’ glad to be home!

Misery

18 Jul

Well…I have some kind of infection, the doctors haven’t figured out what yet, but they’re thinking a virus because the antibiotics haven’t knocked it out. My temp is still pretty high, and they’re using ice packs for it, and they’re freezing my butt off. I had some seizures, too. I’ve been having some pretty intense bouts of vomiting, and I can’t eat anything by mouth, so I’m on TPN again. I’ve been a little jaundiced, and I’m not having any urine output. Fluid is building up in my lungs, making it hard to breathe. I still don’t know why the stomach pain is so bad or what exactly is causing it now, but they’re giving me morphine every few hours, which is odd because I normally get fentanyl or dilaudid. But they’re pretty much keeping me knocked out all day, because when I wake up, it’s pretty much just miserable. Naturally, my mom freaked out and called a bunch of doctors she knows, and they’re trying to figure out what I have. My family caught a flight and they’re here now. My mom is trying to get me transferred home. Through all this, I did get a guy’s number, though. He was visiting the person next to me and said my smile made his day. That kind of made my day. There was this nurse, though, that would not smile for the life of him! I tried to get him to crack a smile because he just looked so miserable, but he just absolutely would not smile. Oh well. I tried. I called some people today and talked to them for a little while. I wrote some nice notes to people and listened to some music when I wasn’t sleeping. Today was difficult, but I tried to relax.